Direct link to ImageShareConceptually similarView AllView more with similar tones Bethan McElwee and her husband Johnny McElwee with their daughter Aviana McElwee on her first birthday. the Family enjoy a picnic at sunset at Cassuarina Beach, Darwin, NT. Aviana has Spinal Muscular Atrophy (SMA) Type 1 which has a life expectancy of 1 to 2 years. 7th July 2017. Photo: Louise Kennerley SMH story by Kate AubussonPhotographer:LOUISE KENNERLEYSee all of this photographer's imagesImage ID:FXB298269Categories:HealthKeywords:Darwin-disease-Northern TerritoryAdd to cartDownload Zoom res. (TR3)DownloadRelated Collections:Photos1440 Exhibition, 2017Select usageWhat type of print?